Volume 6, Issue 2 (8-2019)
Human Information Interaction 2019, 6(2): 57-69 |
Back to browse issues page
Download citation:
BibTeX | RIS | EndNote | Medlars | ProCite | Reference Manager | RefWorks
Send citation to:
BibTeX | RIS | EndNote | Medlars | ProCite | Reference Manager | RefWorks
Send citation to:
Parhamnia F. An Investigation Into Information Needs of Amateur Cares of Adult Alzheimers Patients: A qualitative Study. Human Information Interaction 2019; 6 (2)
URL: http://hii.khu.ac.ir/article-1-2839-en.html
URL: http://hii.khu.ac.ir/article-1-2839-en.html
Islamic Azad University, Kermanshah Branch
Abstract: (3886 Views)
Background and Aim: A prevalent disese among old people is Alzheimers (AD), which requires special care due to its nature. Taking relegion, culture and economy into account, mojorty of families protect an old family member afflicted with AD. However, major concern is the need for sufficient information regarding treatment of elderly dignosed with AD.
Method: Qualitative research approach was applied and content analysis method utilized to analyze the data. Population included 9 patients with Alzheimers. The instrument used was a semi-structured interviews.
Finding: The results of the content analysis of the obtained categories showed that the four main categories and sixteen sub categories are important in the information needs of adherents of patients with AD. The main categories include information needs related to AD, information needs related to mental health, information needs related to physical and personal health and information needs related to health services.
Conclusion: In general, amateur cares (caregiver) were of limited knowledge of physical and mental care regarding AD. Healthcare providers or institutions providing Alzheimer care are mandatory. In addition to specialized services, these people have been trained to provide patients with better patient care
Method: Qualitative research approach was applied and content analysis method utilized to analyze the data. Population included 9 patients with Alzheimers. The instrument used was a semi-structured interviews.
Finding: The results of the content analysis of the obtained categories showed that the four main categories and sixteen sub categories are important in the information needs of adherents of patients with AD. The main categories include information needs related to AD, information needs related to mental health, information needs related to physical and personal health and information needs related to health services.
Conclusion: In general, amateur cares (caregiver) were of limited knowledge of physical and mental care regarding AD. Healthcare providers or institutions providing Alzheimer care are mandatory. In addition to specialized services, these people have been trained to provide patients with better patient care
References
1. Adib Hajbaghery, M., Safa, A., Aminolroayaee-Yamini, E. (2015).Nurses' knowledge of ethical and legal issues in elderly care. Qurterly Medical Ethics. 9 (31); 169-191. (Persian).
2. Aghdamizaheh, S., et al. (2016).The Impact of Individualized Music Therapy on the Behavior of Agitation in Elderly Patients with Alzheimer Living in Nursing Homes. Journal of Health Literacy. 1 (2); 100-108. (Persian).
3. Alzheimer's Assocation (2018). Alzheimer's disease facts and figures. Alzheimers Dement. 14 (3); 367-429. [DOI:10.1016/j.jalz.2018.02.001]
4. Borjaliu, S., et al. (2017). The information needs of parents of children with cancer: A qualitative study. J Qual Res Health Sci. 6 (3); 228-237. (Persian).
5. Burns, N., Grove, S.K. (2009). The practice of nursing research: conduct, critique, and utilization. Translation Nahid Dehghan Nayeri, et al. Tehran: Andisheh Rafi. (Persian).
6. Celsis, P. ( 2000). Age-related cognitive decline, mild cognitive impairment or preclinical Alzheimer's disease. Ann Med. 32 (1); 6-14. [DOI:10.3109/07853890008995904] [PMID]
7. Cobos, F.J.M., Rodriguez, M. del M.M. (2012). A review of psychological intervention in Alzheimer s disease. Int J Psychol Psychol Ther. 12 (3); 373-88.
8. Creswell, J.W.; Plano Clark, V.L. (2011). Mixed methods research. Translation A.R. Kiamanesh and J. Saraei. Tehran: Ayyzh. (Persian).
9. Ghaedi Heidari, F., et al (2014). Effect of family education program on depression, anxiety and stress of family caregivers of elderly individuals with dementia. Journal of Nursing Education. 3 (1); 39-45. (Persian).
10. Hariri, N. (2006). Principles and methods of qualitative research. Thehran: Islamic Azad University, Science & Research branch. (Persian).
11. Hooman, H. (2006). A Practical Guide to Qualitative Research. Tehran: Organization for the Study and Compilation of Humanities Books of Universities (SAMT). (Persian).
12. Hudson, P., et al (2008). Evaluation of a psychoeducational group programme for family caregivers in home-based palliative care. Palliat Med. 22 (3);270-280. [DOI:10.1177/0269216307088187]
13. Iman, M.T., Noshasadi, M.R. (2011). Qualitative content analysis. Research. 3 (2); 15-44. (Persian).
14. Iran Alzheimer's Association.[25 August 2018]. Avaliable at: http://iranalz.ir. (Persian).
15. Khatooni , M., Zohari, S. (2010). A Survey on Communicative Problems Between Elders With Alzheimer Disease and Their Family Care Givers. Salmadn(Iranian Journal of Ageing). 5 (3); 36-42. (Persian).
16. Korolev, I.O. (2014). Alzheimer's Disease: A Clinical and Basic Science Review. Medical Student Research Journal, 04 (fall); 024-033.
17. Kucmanski, L.S., et al. (2016). Alzhei,er's desease: challenges faced by family caregivers. Revista Brasileira de Geriatriae Geronologia (Brazilian Journal of Geriatrics and Geronotology). 19 (6); 1022-1029. [DOI:10.1590/1981-22562016019.150162]
18. Kuzu, N., et al. (2005). Effects of a comprehensive educational program on quality of life and emotional issues of dementia patient caregivers. Geriatr Nurs. 26 (6); 378-86. [DOI:10.1016/j.gerinurse.2005.09.015] [PMID]
19. Lai, C.K.Y., Chung, J.C.C. (2007). Caregivers' informational needs on dementia and dementia care. Asian J Gerontol Geriatr, 2, 78-87.
20. Mazloomi-Mahmoodabad SS, et al (2015). A Study on the Evaluation of Relationship between the Predisposing Factors and Practice and Demographic Variables in Caregivers of Patients with Alzheimer's Diseases. J Isfahan Med Sch. 33 (329); 429-441. (Persian).
21. McGleenon, B.M., Dynan, K.B., Passmore, A.P. (1999). Acetylcholinesterase inhibitors in Alzheimer's disease. Br J Clin Pharmacol. 48 (4); 471-480. [DOI:10.1046/j.1365-2125.1999.00026.x] [PMID] []
22. Mohamadi-Shahbalaghi, F. (2006). Self-Efficacy and Caregiver Strain in Alzheimer's Caregivers. Salmadn(Iranian Journal of Ageing). 1 (1); 26-33. (Persian).
23. Montogomery, W., et al. (2018). Alzheimer's disease serverity and its association with patient and caregiver quality of life in Japan: results of a community-based survey. BMC Geriatrics. 18 (141); 1-12. [DOI:10.1186/s12877-018-0831-2] [PMID] []
24. Parsa, N. (2011). Alzheimer's Disease: A medical challenge of 21st century . Journal of Arak University of Medical Sciences. 14 (2); 100-108. (Persian).
25. Pasand Mojdeh, H., Alipour, F.; Borhani Haghighi, M.(2016). Alzheimer's Disease: Background, Current and Future Aspects. The Neuroscience Journal of Shefaye Khatam (Shefaye Khatam). 4 (3); 71-80. (Persian). [DOI:10.18869/acadpub.shefa.4.3.70]
26. Safavi, M., et al. (2013). The effect of multi-sensory stimulation (MSS) on cognitive status of women with Alzheimer's disease in Fereshtegan elderly care center. Journal of Jahrom University of Medical Sciences. 11 ( 2); 39-45. (Persian). [DOI:10.29252/jmj.11.2.7]
27. Salehi Nejad, S., et al. (2017). The Effect of web-based information intervention in caregiving burden in caregivers of patients with dementia. Journal of Health and Biomedical Informatics. 4 (3); 181-191. (Persian).
28. Samson, Z.B., et al. (2016). Experiences and Learning Needs of African American Family Dementia Caregivers. American Journal of Alzheimer's Disease & Other Dementias. 31 (6); 492-501. [DOI:10.1177/1533317516628518] [PMID]
29. Schulz, R., Beach, S.R. (1999). Caregiving as a risk factor for mortality: the caregiver health effects study. JAMA. 282 (23); 2215-2219. [DOI:10.1001/jama.282.23.2215]
30. Schulz, R., et al. (1995). Psychiatric and physical morbidity effects of dementia caregiving: prevalence, correlates, and causes. Gerontologist. 35 (6);771-791. [DOI:10.1093/geront/35.6.771] [PMID]
31. Takai, M., et al. (2009). The experience of burnout among home caregivers of patients with dementia: Relations to depression and quality of life. Archives of Gerontology and Geriatrics; 49; e1-e5. [DOI:10.1016/j.archger.2008.07.002] [PMID]
32. Wackerbarth, S.B., Johnson, M.M.S. (2002). Essential information and support needs of family caregivers. Patient Education and Counseling. 47; 85-100. [DOI:10.1016/S0738-3991(01)00194-X] [PMID]
33. Wimo, A., Prince, M. (2018). World Alzheimer report, 2010. The global economic impact of dementia. Accessed: [22 August 2018]. Available from: www.alz.org/documents/ national/World_ Alzheimer _Report_2010.pdf.
34. Yektatalab, S., et al. (2012). Caring for patients with Alzheimer's disease in nursing homes: a qualitative content analysis. J Qual Res Health Sci. 1 (3); 240-253. (Persian). [DOI:10.1016/S0924-9338(12)74631-X]
35. Zare, M., Afkham Ebrahimi, A., Birrashk, B. (2009). The effect of music therapy on reducing agitation in patients with Alzheimer's disease in Shahryar city nursing home. Zdvances in Cognitive Science. 11 (2); 55-62. (Persian).
36. Zimmerman, S. (2018). Helping Dementia Caregivers Manage Medical Problems: Benefits of an Educational Resource. American Journal of Alzheimer's Disease & Other Dementias. 33 (3); 176-183. [DOI:10.1177/1533317517749466] [PMID] []
Send email to the article author
| Rights and permissions | |
 | This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License. |
